Preventing Stigma in Public Areas

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In response to the persistent social stigma confronted by leprosy-affected communities, the Rourkela Municipal Company and Rourkela Sensible Metropolis Restricted undertook initiatives to create inclusive public areas, addressing the precise wants of younger kids and caregivers.

Featured picture: Kids from the Leprosy Pada and neighbourhood areas having fun with the play areas through the trial. Photograph by: WRI India.

When Jita Mallick, an educator at Durgapur Anganwadi (early childhood studying and growth centre) in Rourkela was assigned to work with kids in a leprosy colony group, she may see how “the younger kids from the group continued to bear the brunt of the social stigma regardless of not being affected by the illness”.

Leprosy colony located on the fringes of Rourkela. Mapping by Arunima Saha/WRI India.
Leprosy colony positioned on the fringes of Rourkela. Mapping by Arunima Saha/WRI India.  
Supply: Google Maps. 

India is house to the biggest variety of leprosy-afflicted folks on this planet. At the moment, there are near 1,000 leprosy colonies in India, consisting of over three million folks. They largely reside within the fringes of cities and villages. The youthful era from the leprosy households will not be affected by the illness anymore. Nonetheless, the leprosy-affected group continues to face stigmatisation and isolation, which has been normalised as a result of a lack of knowledge that persists to this present day.

A temple and an Anganwadi were the only two community spaces in the Leprosy Colony within the Durgapur slum. Mapping by Arunima Saha/WRI India.
A temple and an Anganwadi had been the one two group areas within the Leprosy Colony inside the Durgapur slum. Mapping by Arunima Saha/WRI India. Supply: Google Maps
Unequal distribution of parks in these slums vis-a-vis the affluent colonies in Rourkela. 
Mapping by Arunima Saha/WRI India.
Unequal distribution of parks in these slums vis-a-vis the prosperous colonies in Rourkela. 
Mapping by Arunima Saha/WRI India. Supply: Google Maps.

The Durgapur Leprosy Colony lacked a devoted play space for younger kids. “There is no such thing as a play house locally. Kids play in areas stuffed with mud and stagnant water. Typically it results in infections,” rues Dullamani Pradha, mom of a six-year-old.

The younger kids and caregivers’ vary of mobility, being restricted to the neighbourhood every day, additionally impacts their entry to protected and wholesome play areas and outside time, as in comparison with surrounding formal settlements.

Community space created within the Leprosy Colony in Rourkela, Odisha.
Group house created inside the Leprosy Colony in Rourkela, Odisha. Photograph by: WRI India

Recognising the challenges confronted by the group, the Rourkela Municipal Company (RMC) and Rourkela Sensible Metropolis Restricted (RSCL) determined to result in sustained transformation via the creation of a younger kids and caregiver-friendly public house beneath the Nurturing Neighbourhoods Problem (NNC).

Led by the Ministry of Housing and City Affairs and Sensible Cities Mission (MoHUA) and supported by the Van Leer Basis with WRI India as its technical accomplice, the NNC is bringing a young-children-and-caregiver-friendly perspective to city planning throughout 10 Indian cities. This expertise supplied many learnings that might profit City Native Our bodies (ULBs) working with such weak communities.

Engagements conducted with the community, specifically with women and children, helped identify suitable sites.
Engagements carried out with the group, particularly with ladies and youngsters, helped determine appropriate websites. Photograph by: Rourkela Sensible Metropolis Restricted (RSCL) 

RMC and RSCL interacted with Leprosy Pada residents, each younger and outdated, and carried out common group engagements to know their wants higher. Such interactions not solely helped in garnering a consensus but in addition helped in figuring out the present utilization patterns of the residents that enabled the clustering of various actions.

Appropriate websites for the interventions had been then recognized based mostly on the info collected to make sure the protection, accessibility, and footfall of younger kids and their caregivers. The involvement of native ladies from the beginning has additional ensured the upkeep of the reworked house beneath the MUKTA (Mukhya Mantri Karma Tatpar Abhiyan) mission.

Children playing in the sandpit near the temple in Leprosy Pada.
Kids taking part in within the sandpit close to the temple in Leprosy Pada. Photograph by: WRI India

Trial interventions that concerned all stakeholders helped foster a way of possession within the mission. RMC and RSCL piloted and examined out the answer utilizing low-cost, simply obtainable supplies reminiscent of tyres and sand. These short-term play components acquired an amazing response from the group kids.

In a primary, an occasion organised on this neighbourhood attracted outsiders as energetic contributors. The open play house was clearly demarcated with fencing and seating was added close to the playground for the accompanying caregivers. “Our kids at the moment are spending the entire day within the playground,” laughs Nandini Bariha, a caregiver of a five-year-old.

Reimagining the environment in the direction of shaping one public realm 

Women self-help group meetings held in the community space.
Ladies self-help group conferences held locally house. Photograph by: WRI India 

Seeing the rising public acceptance, RMC and RSCL began appreciating the general public house and commenced enhancing the general space by closing open drains, putting in seating, and organising an out of doors gymnasium. Whereas the play space sees a excessive footfall of youngsters, the adjoining areas are turning out to be dynamic entities, attracting residents from each Leprosy Pada in addition to from the adjoining colonies.

Health camp set up in the public space for the community.
Well being camp arrange within the public house for the group. Photograph by: WRI India 

This space is right now a gathering house for a number of actions together with well being camps and ladies’s self-help group conferences.

Securing funding via scheme convergence

Seating spaces, paved footpaths and open gym area added near the play space.
Seating areas, paved footpaths and open gymnasium space added close to the play house. Photograph by: WRI India 

With the rising footfall and demand from kids, RMC and RSCL expanded the scope of the work so as to add formal play tools within the park and allow the upkeep of the house. RMC and RSCL secured finance for a similar by converging funds from varied programmes and schemes — such because the JAGA Mission, MUKTA Mission and SHAKTI Mission — that purpose to offer high quality livelihood alternatives to slum dwellers in numerous cities in Odisha.

“We’re blissful to see exterior communities come to Leprosy Pada and use our park and gymnasium. This makes us really feel dignified. We’ve got turn out to be equals now and there’s no distinction between us and them,” says Gopal Bini, an 80-year-old resident of Leprosy Pada.

Via the energetic participation of the group, a public house for younger kids was not simply improved however is now thriving as an area for everybody. Folks from adjoining communities now go to the Durgapur slum extra ceaselessly, blurring the bodily and social boundaries that when existed. That is additionally fostering a way of dignity within the residents who now really feel like part of the bigger group giving them the hope that there’s a higher, inclusive future for his or her kids.

Watch this video to understand how the group is flourishing:

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This text was co-authored and contributed by Dr Shubhankar Mohapatra, IAS (Collector and District Justice of the Peace, Jajpur; Former Commissioner, Rourkela Municipal Company; and CEO, Rourkela Sensible Metropolis Restricted); Arunima Saha (Program Affiliate, Sustainable Cities & Transport program, WRI India); Sree Kumar Kumaraswamy (Program Director, Clear Air Motion, Sustainable Cities & Transport, WRI India).

(Edited by Pranita Bhat)



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